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Brain Tumor Foundation for Children, Inc.
www.braintumorkids.org
Dedicated to helping children with brain and spinal cord tumors and their families. The Foundation’s mission is to provide financial assistance, social support, and information for families of children with brain and spinal cord tumors; fund research projects that improve treatment options and search for a cure; and raise public awareness of the disease and advocate on behalf of children who
are affected.
Children’s Brain Tumor Foundation
www.cbtf.org
CBTF’s mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.
The Pediatric Brain Tumor Foundation
www.pbtfus.org
PTF seeks to find the cause and cure for childhood brain tumors by supporting medical research; increase public awareness about the severity and prevalence of childhood brain tumors; aid in the early detection and treatment of childhood brain tumors; support a national database on all primary brain tumors; and provide educational and emotional support for children and families affected by
this life-threatening disease.
Pediatric Low Grade Astrocytoma Foundation
www.fightplga.org
The PLGA is dedicated to providing hope to children, parents and families fighting Pediatric Low Grade Astrocytomas. The Foundation awards 100% of funds to education and research in the search for more effective, less toxic treatment options for this potentially devastating childhood brain tumor.
WE CAN Pediatric Brain Tumor Network
www.wecan.cc
We Can offers information and emotional support to families whose children have brain tumors. They bring families together to meet, share stories and equip each
other to manage treatment and recovery of their children. Services include: parent to parent mentoring, family camps, hospital and clinic visits, kidshops for patients and their siblings, teen group activities and parent education meetings.
Pediatric Brain Tumor Consortium
www.pbtc.org
PBTC is a multidisciplinary cooperative research organization devoted to the study of correlative tumor biology and new therapies for primary CNS tumors of
childhood. Their mission is to contribute rapidly and effectively to the understanding and cure of these tumors through the conduct of mult-center, multidisciplinary,
innovative studies with designs and analyses based on uniformly high quality statistical science.
American Brain Tumor Association
www.abta.org
The ABTA exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families.
Brain Tumor Action Network
www.btan.org
The BTAN fosters grassroots advocacy on federal and state legislative issues affecting brain tumor survivors, their families and friends by providing informatioon on brain tumor-related public issues and effective advocacy.
Central Brain Tumor Registry of the United States
www.cbtrus.org
The CBTRUS is committed to providing a resource for gathering and disseminating current epidemiologic data on all primary brain tumors, benign and malignant, for the purposes of accurately describing their incidence and
survival patterns, evaluating diagnosis and treatment, facilitating etiologic studies, establishing awareness of the disease and ultimately, for the prevention of all brain tumors.
National Brain Tumor Society
www.braintumor.org
The NBTS offers resources and caring support to everyone affected by brain tumors. They provide education and information to help patients, families, and caregivers make informed decisions and develop strong support systems during every stage of the journey- from diagnosis through
treatment to end of care and survivorship.

Craniopharyngioma
www.braintrust.org/cranio/
Medulloblastoma and Primitive Neuroectodermal Tumor
http://listserv.acor.org/archives/medullo-pnet.html
 

Candlelighters Childhood Cancer Foundation
www.candlelighters.org
The CCCF’s mission is to provide information and aware-ness for children and adolescents with cancer and their families, to advocate for their needs, and to support re-search so every child survives and leads a long
and healthy life.
The Children’s Cause for Cancer Advocacy
www.childrenscause.org
The CCCA is a national advocacy organization working to achieve access to less toxic and more effective therapies, expand resources for research and specialized care, and to address the unique needs and challenges of childhood cancer survivors and their families.
Children’s Hospice International
www.childrenscause.org
CHI’s mission is to promote hospice support through pediatric care facilities; encourage the inclusion of children existing and developing hospice, palliative, and home care programs; include hospice perspectives in all areas of pediatric care, education and the public arena.
Cure Search/National Childhood Cancer Foundation
www.curesearch.org
Cure Search represents the combined efforts of the National Childhood Cancer Foundation and the Children’s Oncology Group. They provide parents and families of children coping with cancer educational and support services.
National Cancer Institute
www.cancer.gov/
NCI is a National Institute of Health partner that provides information on cancer topics,clinical trials, cancer statistics, research & funding both for the general public as well as, for scientists.
National Cancer Institute Pediatric Oncology Branch
http://home.ccr.cancer.gov/oncology/pediatric
The POB provides patients, families and physicians with an overview of the type of treatments available for children with cancer and of the research conducted by investigators at the Pediatric Oncology Branch.
National Children’s Cancer Society
www.nationalchildrenscancersociety.org
The NCCS’s mission is to improve the quality of life for children with cancer and their families worldwide. They serve as a financial, emotional, educational and medical resource for those in need at every stage of their illness and recovery. In the US, they ease the financial burdens
that accompany major illness; give crucial support and comfort; and address the challenges of survivorship. Abroad, they provide lifesaving pharmaceutical drugs, medical supplies and equipment to facilities that treat children with cancer.
The Compassionate Friends
www.compassionatefriends.org
The mission of the Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive. There exists over 600 chapters nationwide.
American Stroke Asssociation
www.strokeassociation.org
Information and resources on stroke for stroke patients as well as, for health care professionals.
California Brain Injury Association
www.calbia.org
The CALBIA provides information, referrals, education, advocacy and support for those affected by brain injury.
 
   
   
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Malena's Foundation is a 501(c)(3) non-profit organization.